Covid-19 and Cancer – Self-Isolation Isn’t Just About You

On this, my second “Cancerversary,” I want to urge my fellow citizens to take this pandemic seriously, shelter-in-place, flatten the curve, and listen to scientists and health experts rather than politicians and rabble-rousers who value the economy over health and safety.

I originally submitted this as an Op-Ed to several news outlets, but in light of my upcoming surgery, the first of two thanks to Covid-19 dangers that have delayed my reconstruction following mastectomy, I decided to do a blog post. This is important. We’re all in this together, and those who choose to ignore expert advice are putting people like me in danger.

This isn’t the time to be selfish. Self-isolation isn’t just about you.

Like many Americans, I’ve been working remotely to comply with social-distancing and shelter-at-home measures. As a biomedical research scientist, I understand the particularly insidious way SARS-Cov-2, the coronavirus behind the deadly pandemic, can be transmitted exponentially through populations. Death tolls are rising. We’ve been told we need to flatten the curve, which means we need to slow the spread of the virus so we do not exceed the capacity of the healthcare system to treat severely affected patients. There are a limited number of ventilators available, a message that was driven home by Dr. Emily Porter, board-certified emergency physician and sister of U.S. Representative Katie Porter. Dr. Porter used her sister’s approach to educate the public on how exponential spread of the virus could overwhelm the U.S. Healthcare system, forcing doctors to ration resources and decide who gets a vent and who doesn’t. It’s a horrifying, ugly scenario with 1 patient in 50 getting a vent, and 49 patients left to die.

What will happen if we don’t flatten the curve and instead overwhelm the healthcare system.

Her words at sent chills down my spine. “Imagine if you had to say, ‘Oh, I’m sorry. You’ve had cancer before, so therefore you don’t have a perfectly clean bill of health, so you’re not worth saving.’” I am a person living with cancer. My surgery has already been postponed due to the pandemic. Luckily, my tumor is slow-growing, giving me the luxury of time. Many thousands of other Americans and cancer patients around the world do not have that luxury. Cancer treatments cannot be suspended during the pandemic. As I passed through the Vanderbilt-Ingram Cancer Center on my last day of work, I saw a room full of men, women, and children, some in masks, waiting for their chemotherapy treatments. On the floor below, others waited for radiation therapy, and in the hospital a block away, cancer patients were recovering from surgery. These people are not only at risk for exposure while at their appointments, they are also immune-compromised or immune-fragile due to their cancer treatments and are less capable of fighting off the virus. To put that in perspective, a portion of the roughly 650,000 cancer patients who receive chemotherapy annually, not counting those receiving radiation therapy or the host of other patients with co-morbidities, are already more vulnerable to covid-19 death. Without ventilators, an unfathomable number of these patients will likely die. If we ration ventilators based on co-morbidities like cancer, I wouldn’t get a vent if I became infected.

I don’t want to die. None of these cancer patients, or patients with co-morbidities like autoimmune diseases, obesity, diabetes, or others want to die. Can you imagine beating cancer only to succumb to a virus, knowing that your fellow humans didn’t care enough to follow measures to flatten the curve and that’s why you can’t get lifesaving ventilation? Imagine your mother, your grandmother, your child, a newborn baby, your best friend, your colleagues, and imagine life without them—knowing they are gone because the people in their communities didn’t care enough to follow the rules.

Until recently, Tennessee has had a subpar response to the pandemic. Nashville has fared better thanks to measures implemented by the mayor, but there are too many state and local communities that aren’t taking this seriously. I implore them and I implore each of you reading this: follow the rules. Social-distance, shelter-at-home, don’t go out unless absolutely necessary, and take precautions when you do. Wash your hands. Hunker down. We can and will get through this, but only if we all do our part. Please do your part so people like me don’t have to die.

Resources for Cancer Patients During Pandemic: American Cancer Society, Immuno-Oncology News, Breast Cancer News

Staying Mentally, Physically, and Spiritually Healthy During Shelter-At-Home

As much of America (not enough, but we’re getting there) and the world at large continue to shelter-at-home, self (or mandatory) quarantine, and take other measures to flatten the Covid-19 curve (In epidemiology, the curve refers to the projected number of new cases over a period of time), we’re facing many new challenges. We’re worried about our finances, job security, food security and the supply chain, medical supplies, and the economy, of course. We’re worried about our families, friends, communities, and the long-term impact of this pandemic. We’re worried about our childrens’ education, which like most of the rest of societal norms, has been put on hold. We’re worried about how and when the pandemic will end, and what we can do to prepare for the next one.

There will be a next pandemic. It’s inevitable.

For many of us who are classified as non-essential workers, we have more time to worry as we remain isolated from friends, family, and other social supports. It’s the perfect storm for anxiety and depression to thrive, and it’s a problem. Maintaining mental well-being, as well as physical and spiritual, can be a struggle in these difficult times. But it is essential if all of us are going to get through this.

I’m fortunate to have access to Telehealth services – hell, let’s be real: I’m fortunate to have access to healthcare and coverage in this nation, something we should ALL HAVE. I’ve been receiving tips from my wonderful therapist (and my son’s therapist, too), and I’d love to share this advice with all y’all. I hope it helps.

Keep a Regular Schedule

Link to source.

Keeping a routine is beneficial for health and well-being. You don’t have to be super rigid about it – flexibility is key. For us, weekdays consist of a regular wakeup time at 8:00 a.m., a loose homeschool schedule, regular healthy meals, free time in the evening, and a regular bedtime. Small steps, but they are sanity savers in uncertain times. We don’t know what’s coming tomorrow in the wider world, but we know what we need to do for the hours in the day. This is especially good for children.

Tune Out The Noise – News and Social Media

Link to source.

The media is a double-edged sword and has been for a long time. It’s important to keep abreast of local, national, and international news in a time of crisis, but too much apocalyptic doomsday speculation, news of tragedy, talking heads arguing back and forth, and watching our leaders at their worst isn’t healthy. Social media is much the same. Take a break. My therapist suggested having a designated 30 minute to 1 hour slot for checking in with the news and “unplugging” for the rest of the day. News is one thing, but I’m a social media addict! I love FaceBook, Twitter, and Insta, and these tools can be useful in terms of feeling connected with people during the isolation period. But avoid fights, don’t use social media as a gateway for too much bad news coverage to seep in, and don’t fall into the rabbit hole of 3 hours in TikTok land. That’s just not healthy.

Healthy Eating and Exercise – Essentials of Self-Care

Link to source.

This one’s been a challenge for me – eating healthy is hard when you love to bake and have time. But there are no downsides to healthy eating and exercise, and many of us have time now! The Internet is full of amazing recipes, which is especially useful when you’re working with a limited supply of ingredients. Check out this site for tools to help you plan meals based on what’s in your fridge and pantry. If you’re having trouble feeding yourself or your family, check with your school system (MNPS is continuing weekday meal service for students and families), food banks (find one near you here), and for state and local programs in your area.

For exercise, something as simple as stretches, sit ups, jumping jacks, and leg lifts are always a good choice. I’m working on strength and flexibility to manage side effects of tamoxifen and prepare for my mastectomy, so yoga is my go-to. Yoga with Adrienne is my online go-to. Walking through your neighborhood (while maintaining social distancing) is another great option, as is yard work, housework, and games like Just Dance and video game fitness options. Move your body several times a day in whatever way works for you.

Need to unwind? Warm baths and showers with extra pampering time are fantastic. Deep condition your hair, massage your scalp, practice mindfulness as you take care of your body. Whatever spiritual path you follow, rituals work to calm, heal, and comfort in difficult times. Use them, but do it safely. No mass gatherings!

Find Connections When and Where You Can

Remember when I said to avoid social media? While avoiding the negativity on social media is a great thing, using it as a tool to connect with people you cannot see in person is a beautiful thing. I’m appreciating all of the amazing talents on display in FaceBook, Twitter, and Insta videos, which is even more fun with people I know! Have an IM chat. Call a friend or family member. Use Zoom, Skype, or FaceTime if you’re so inclined and are willing to put on a bra (pants optional). Human connection, even for introverts like me, is essential.

You might consider creating content to share during quarantine. I’ve done my part with this dramatic reading of “Does It Fart” to educate and entertain the public with the subject of animal flatulence.

Don’t Drink, Sleep, or Work Too Much: Moderation

It’s tempting to use this shelter-at-home thing as an excuse to over indulge. If you’re drinking or using drugs to self-medicate, though, please stop! You’re risking your life, health, and emergency medical services are already strained due to the pandemic. Get help! You are important, you matter, and we can’t lose you!

Getting rest is a good thing, but too much sleep isn’t healthy. See above – keep a routine, including a normal sleep routine, for health and sanity.

It’s tempting to use this time to dig deep into work-related projects, as many of us feel the pressure to catch up, not get behind, and are worried about career and job security in this difficult time. But, as noted above, routine is key. Work, take regular breaks, and STOP each day. This is therapist-recommended!

Have fun and Be Weird

My photo – I’m the soure!

You’re at home with family, pets, or possibly on your own.

Embrace your weirdness and have fun with it!

In my house, we have Bob, the Halloween skeleton who we’ve decided is (a) not just for Halloween, (b) gender fluid, and (c) a being for all seasons. Bob likes to dress for the season, so he’s sporting one of my favorite sundresses, a lovely cap, and is striking a sassy pose with flowers. That’s my weird (one of them, anyway).

What’s yours?

Resources for pandemic: Ready.gov, Benefits.gov (resources for unemployment, healthcare coverage, food), GrantSpace.org (links to resources for bill pay assistance, grants, etc.)